Remember when we asked you to fill out a Customer Care survey and we promised we’d donate £5 to charity for every completed form? Well, if you took part, this is where the fiver you generated ended up…
You’ve probably never heard of Leigh’s Syndrome. It’s a rare inherited neurometabolic disorder, which affects the central nervous system.
Olivia is sixteen years old and if you click on the ‘Leigh’s syndrome’ link above, you’ll get some idea of what she has to live with; but be warned: it’s not, in any sense, an easy read just as hers is not, in any sense, an easy life…
It’s heartbreaking, but the irrefutable fact is that hers is a ‘life limiting condition’; it means she’s a semi – permanent resident at Birmingham Children’s Hospital. You wouldn’t choose it as a venue for your 16th birthday party, but that’s what circumstances dictated: Olivia needs constant care and supervision. Read more